Take the Survey

The survey is sponsored by the National Institutes of Health, part of the federal government’s Department of Health and Human Services.

The results of this survey may help improve how researchers request permission to use personal health information.

No personal health information will be collected in this survey. There are no right or wrong answers in this survey. Your participation is voluntary. Your answers will be kept completely private, will not shared with anyone outside of the study team, and are protected by a Certificate of Confidentiality from the US government.

Enter your PIN to start the survey or pick up where you left off.

8 character code (e.g., A2B5C7D3)

Lost your PIN? Request that it be emailed to you. If you prefer to take the survey by telephone interview, please call the toll-free hotline at 1-855-212-5591.

Frequently Asked Questions

  • 1Who is sponsoring the Health and Privacy Study?
  • The survey is sponsored by the National Institutes of Health, part of the federal government’s Department of Health and Human Services. The study is supported by NIH contract number HHSN263201500040I.

    The results of the survey will help us understand how Americans feel about the use of their personal health information for research. The results may also help improve how research is conducted or even inform national policy. This is your chance to tell the government how you feel about the use of your personal health information.

    Hundreds of people will take this survey and all the results will be combined together. Your answers will not be viewed or used individually and will be kept completely private.

  • 2How can I get more information about the NIH contract that is funding this survey?
  • More information about the contract can be obtained on the NIH website at https://osp.od.nih.gov/clinical-research/bioethics-research-nih-contract.

    This link was provided as a shortcut in the letter or postcard you received as http://bit.ly/NIH-OSP-GOV.

  • 3How long will the survey take?
  • The survey will take about 10 minutes to complete.
  • 4Who is conducting the study?
  • The study is being conducted by Booz Allen Hamilton (BoozAllen.com) in collaboration with Westat (Westat.com).
  • 5Will my answers be kept private?
  • Any information collected in this study will be kept private and not shared with anyone outside of the study team. It is protected by a Certificate of Confidentiality from the U.S. government. Your responses will be combined with others so that no one will be able to identify you or anyone in your household. We will use the information you provide for statistical purposes only.
  • >

Contact Us

Survey Hotline

Have questions about participating in the Health and Privacy Study?

Send us a message or call the toll-free hotline at:

1-855-212-5591

Monday – Friday: 9 am – 5 pm, Eastern

#We're on social networks

The Health and Privacy Study is committed to respecting your privacy.

Any information collected in this study will be kept private and not shared with anyone outside of the study team. It is protected by a Certificate of Confidentiality from the U.S. government. Your responses will be combined with others so that no one will be able to identify you or anyone in your household. We will use the information you provide for statistical purposes only.

We want you to feel secure in providing responses to our questions. Your decision to participate is voluntary and greatly appreciated. While some questions are required for participation, you may decline to answer any question.

For more information, contact us.

#list each photo as a paragraph using Wikimedia Commons content